Mum’s race to ‘make memories’ with son who only has months to live

A mother whose 11-month-old son only has months to live is fundraising to be able to make as many memories as a family together.

Jacob Mortimer was first diagnosed with an atypical teratoid rhabdoid brain tumour at just six months old.

But despite undergoing surgery and chemotherapy his devastated parents have been told the tumour is growing.

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His mum Andrea, from Penrith, explained: “Jacob was diagnosed with a brain tumour at six months old.

“We had three options. One was the operation and chemo, but we could have lost him on the table; palliative chemo, or take him home and just see how long he lasts.

“We asked how long that would be that they said a few days to a week. So we took operation and he got through the operation and he was doing well on his chemo.

“We had an MRI on May 28, because he had finished his chemo, and they told us that the brain tumour was growing back even with chemo and there was nothing else they could do.”

This sparked Andrea and her husband David to set up the GoFundMe to try and raise some money in order to be able to make memories as a family.

Jacob was diagnosed at just six months old
Jacob was diagnosed at just six months old

The couple first noticed that something was wrong with Jacob when he started being sick every day.

“It started off he was being sick, it was just once a day and it was in the mornings,” continued Mrs Mortimer.

“We didn’t really think much of it. The last week of January he didn’t want his bottles and he was being sick. In February I called the doctor and they thought it might be because we were weaning him.

“In the early hours on February 3, he started bringing up a watery fluid and I would say it had dried blood in it. I called the doctor and they said they could give us something for reflux or we can send you to Carlisle children’s ward.”

Jacob was taken into the children’s ward at the Cumberland Infirmary, Carlisle where doctors checked him over and asked if they could measure his head.

Mrs Mortimer added: “They asked me if I thought Jacob’s head was unusually big for six months and I didn’t because I had other children.

“But they said they thought he had fluid on his brain and needed him to have an ultrasound and that’s what he had.

“He was rushed to Newcastle and the pressure had built up so much he had a seizure. He had to be rushed into surgery to have an external tap put in.”

Jacob's family are fundraising to make memories with him
Jacob’s family are fundraising to make memories with him

Jacob has five brothers and one sister. One of which he hasn’t met due to Covid-19 restrictions.

Mrs Mortimer is hoping to have a photoshoot with the whole family and a holiday as well as days out as a family.

She just wants to be able to make memories as a family together.

To donate to Jacob’s fundraiser click here.

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Lancs Live – Cumbria